Becker’s Myotonia

One thing i feel like I need to explain is Becker’s Myotonia, as it along with my family and friends are what has shaped my life the most.
Becker’s is a disease I’m born with, which makes it so that every time I use a muscle that has relaxed for a little while, I won’t be able to relax for a few seconds when I start to use them again. This makes it hard for me to run, make quick movements and lift heavy things.
The easiest way to explain what I have found is the following: When you contract a muscle, imagine a chain being lopped shorter and locked with a padlock. When the muscle needs to relax, you are using the key to unlock the padlock, giving more leeway to the chain. For me, that key has rusted. So it still fits, it just needs a bit of work and tinkering to do the job.

Luckily for me, this doesn’t stop me from having a “normal” life and taking care of myself. But I have formed my life around it, to make things easier for myself. It has stopped me from doing a few things, but like so much in life, you don’t have the time to do everything you want anyway.
At this point in time there is no cure for it, and there properly won’t be. However I can use medication to help with the symptoms, but the most effective medicine so far, is both quite expensive and has a lot of side-effects, therefore I don’t usually use this medicine.

I’m not sore about this topic, and if anything else I’m happy to explain it to people if they want to know more. This is part of me, and there is no way of changing that.